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A Beacon of Hope in the North: PsorPhil's Groundbreaking GPP Project Expands Reach

For patients battling Generalized Pustular Psoriasis (GPP), a rare and severe form of psoriasis, the journey can be isolating and daunting. However, a beacon of hope has emerged in the Philippines in the form of Psoriasis Philippines (PsorPhil), a patient support group leading the charge in GPP care.

PsorPhil's groundbreaking GPP project is the first of its kind – a testament to the immense power of patient-led initiatives. This project goes beyond support groups, forging crucial partnerships with hospitals like Regional 1 Medical Center (R1MC) in Dagupan, Pangasinan. R1MC becomes the second hospital to join this pioneering effort, bringing much-needed specialized care to the northern Philippines.

Imagine the impact: GPP patients in the north can now access expert care focused on their needs. This is a game-changer, offering not just improved medical attention but also a renewed sense of well-being and hope.

PsorPhil's dedication is awe-inspiring. Their leadership, spearheaded by President Paul Albert Mendoza, CEO Josef De Guzman, and a passionate team, is forging a new path for GPP patients. This patient-driven approach, coupled with the expertise of hospitals like R1MC, is a powerful force for positive change.

The signing of the MOU between PsorPhil and R1MC is more than just a formality. It signifies a new era of comprehensive GPP care in the Philippines. It's a testament to the unwavering commitment of PsorPhil and a beacon of hope for patients seeking specialized treatment and a supportive community.

They prove that even the rarest conditions can be tackled with patient-centered solutions and powerful partnerships. Thanks to the tireless efforts of PsorPhil and their growing network of dedicated partners, the future for GPP patients in the Philippines is brighter than ever.

Filipinos with Rare Disease Condition to See Hope: Psoriasis Philippines and Tondo Medical Center Forge Historic Partnership in Landmark MOA Signing

Filipinos with Rare Disease Condition to See Hope: Psoriasis Philippines and Tondo Medical Center Forge Historic Partnership in Landmark MOA Signing

Manila, Philippines – April 29, 2024 – In a landmark agreement signed today, Psoriasis Philippines (PsorPhil), a leading patient advocacy group, and Tondo Medical Center (DOH-TMC) join forces to launch the world's first collaborative care project designed explicitly for Filipinos battling Generalized Pustular Psoriasis (GPP), a rare and debilitating form of psoriasis.

A Beacon of Hope for GPP Patients
This groundbreaking MOA signing, led by PsorPhil President Paul Albert Mendoza, PsorPhil Founder and CEO Josef de Guzman, PsorPhil Secretary-General Emmylou Casanova, Dr. Noel P. Coronel, MD, FPCP, MGM (Chief of Medical Professional Staff II) of Tondo Medical Center, and Dr. Roberto Antonio B. Pascual, MD, RPh, FPDS, Head of the Department of Dermatology and Venereology at Tondo Medical Center, marks a significant turning point for Filipinos with GPP.

Imagine a future where GPP patients receive the immediate, specialized care they deserve. That's the vision PsorPhil is turning into reality. Under this innovative agreement, PsorPhil will act as a bridge, identifying GPP patients needing immediate medical attention and ensuring smooth referrals to Tondo Medical Center's dedicated GPP team.

Tondo Medical Center Steps Up
Tondo Medical Center isn't just providing beds; it's giving hope. It's pledged to prioritize GPP cases, assemble a specialized team, and offer all necessary treatments within its facility. For unavailable diagnostics or treatments, it'll ensure swift referrals. But its commitment goes further. Tondo Medical Center will also collaborate with PsorPhil on public awareness campaigns, educating healthcare professionals and the public about GPP.

A Call to Action for Other Hospitals
This partnership is a call to action. PsorPhil is actively seeking ten additional hospitals to join this groundbreaking initiative within the year, making it a truly national effort to improve the lives of GPP patients. Hospitals interested in partnering with PsorPhil can contact them directly to be part of this world-first project.

Together, We Can Create a Brighter Future
This historic partnership signifies a new era of comprehensive care for GPP patients in the Philippines. With combined efforts, PsorPhil and Tondo Medical Center offer hope for Filipinos battling this challenging condition.
Contact:

Psoriasis Philippines (PsorPhil) at info@psorphil.org, https://www.psorphil.org/

GPP Network Launch by Psoriasis Philippines (PsorPhil): A Beacon of Hope for Generalized Pustular Psoriasis (GPP) Patients 

Manila, Philippines - October 31, 2023 - Psoriasis Philippines (PsorPhil), the leading national advocacy and support group for individuals living with psoriatic diseases, has marked a historic moment with the launch of the GPP Network. This groundbreaking initiative focuses on individuals battling Generalized Pustular Psoriasis (GPP), an exceedingly rare and severe form of psoriasis that can be life-threatening. 

What is GPP? 

Generalized Pustular Psoriasis (GPP) is a rare and severe autoimmune inflammatory disorder, causing widespread, painful, and pus-filled blisters (pustules) on the skin, often surrounded by inflamed, red skin. Due to its potentially life-threatening nature and significant impact on well-being, early diagnosis, and appropriate treatment are critical. 

The Launch of the GPP Network 

On October 25, PsorPhil gathered GPP patients across the Philippines to launch the Psorphil-GPP Network. The event saw distinguished speakers from the Philippine Dermatological Society, Philippine Rheumatology Association, and Philippine Psychiatry Association deliver informative talks on GPP. We extend our heartfelt gratitude to Dr. Bryan Guevara (PDS), Dr. Aldo De Vera (PRA), and Dr. Tofi Sison (PPA) for their valuable contributions to this crucial event. 

Emotions ran high during the event as GPP patients shared their challenges, making it a poignant and unforgettable moment. The event was a hybrid gathering, with many patients joining via Zoom to ensure their participation. Some patients traveled hundreds of kilometers to the venue in Quezon City, underscoring the significance of the GPP Network. 

The event's highlight was the signing of a Memorandum of Agreement between PsorPhil and several hospitals that recognize the urgent need for partnership. This alliance aims to save lives during GPP flare-ups, demonstrating a commitment to the well-being of GPP patients. 

About Psoriasis Philippines (PsorPhil) 

Psoriasis Philippines (PsorPhil) is a non-profit organization by the patients for the patients and is Nationally and internationally recognized advocacy and support group for individuals with psoriatic diseases in the Philippines. Established in 2005, PsorPhil is affiliated with international patient organizations and continues to develop programs that benefit the Filipino Psoriasis community under its current President, Paul Albert Mendoza. 

Media Contact 

For press inquiries about PsorPhil, please contact: Email: info@psorphil.org 

Congratulations, Jannarie Zarzoso ❤❤❤
You have inspired the PsorPhil community by carrying the flag of our psoriasis advocacy in the MUP pageant and showing the world that psoriasis should not stop us from achieving our goals. Your courage, determination, and grace have touched many hearts and demonstrated that anything is possible if we believe in ourselves.
Congratulation on winning many awards in the competition, which is a testament to your hard work, talent, and dedication. We are proud of you for representing the psoriatic community with poise and elegance.
»MUPH Top 10 Finalist
» Glam Challenge Winner
» Face of Social Media Winner
» Swimsuit Challenge Top 5
» Runway Challenge Top 5
» Miss Kingston International College
» Tingog ng Filipina Mindanao
» Miss Aqua Angels

We want you to know that Psoriasis Philippines is always here to support you. You have been a part of our family and will always be. We hope that your success will encourage others in the community to pursue their dreams and never give up on what they believe in.
Once again, we wish you all the best in your future endeavors. We know you will continue to shine and inspire many, and we are honored to have you as a family member.
#MissUniversePhilippines2023  #MUPH2023 #AgusanDelNorte #MissCabadbaranCity #PsoriasisWarrior #PsoriasisAdvocate #PassThePsoriasisBillNow #WeArePsorPhil #PsoriasisPhilippines
Caravan of Hope
Weekends With PsorPhil is evolving and we are ready to bring you more exciting engagement with our community. This coming July, WWP will be rebranded as Wellness Weekends Philippines to bring more relevant topics about health and wellness. As we are gearing towards this new season, we are inviting you to be part of the WWP Broadcast Team. We are in need of the following:
1. Hosts
2. Production Manager
3. Segment Producers
4. Writer
5. Researchers
6. Live moderators
For more details on how to volunteer, please message us on our Fanpage or email us at info@psorphil.org
Psoriasis Philippines, in partnership with Philippine Coalition for Psoriatic Disease, Philippine Dermatological Society, and Philippine Rheumatology Association, is inviting City Health Officers, Municipal Health Officers, General Practitioners, Family Med Doctors, and local doctors from NCR and South Luzon to join a free 4-week online course to learn about Psoriatic Disease starting on July 12 to August 2, 2022.

Here is Dr. Francisco Rivera IV, the President of Philippine Dermatological Society (PDS), giving his invitation to enroll in our PsorPhil Caravan of Hope: A Digital Training for Municipal Health Officers and Local Doctors.

Register now!
Psoriasis Philippines, in partnership with Philippine Coalition for Psoriatic Disease, Philippine Dermatological Society, and Philippine Rheumatology Association, is inviting City Health Officers, Municipal Health Officers, General Practitioners, Family Med Doctors, and local doctors from NCR and South Luzon to join a free 4-week online course to learn about Psoriatic Disease starting on July 12 to August 2, 2022. Here is Dr. Antonio C. Sison, the President of Philippine Psychiatric Association Inc. (PPA), giving his invitation to enroll in our PsorPhil Caravan of Hope: A Digital Training for Municipal Health Officers and Local Doctors.
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Caravan of Hope
Psoriasis Philippines (PsorPhil) is the ONLY FILIPINO group recognized by the International Federation of Psoriasis Association and the International Psoriasis Network. Psorphil is a founding member of PsorAsia+Pacific.
 
Psorphil Secretariat 
• Mandaluyong, Philippines
• +932 8926928
• info@psorphil.org